Although Marfans Syndrome is not well know quite a few thousand people have it in Australia alone... There are support groups running and annual get together's and such throughout Australia...

Marfans Syndrome is a disorder of the Connective tissue... In Layman terms, all the bits that hold your joints together start to become loose and may even require surgery to repair them... Also there is connective tissue in your eyes and heart so you can imagine the problem can prove to be fatal if not treated...

Personally I have what the Doctor's call Marfanoid Hypermobility... Simply put I have the joints that are stuffing up but there is no eye or heart involvement... There is nothing they can do to stop my joints cracking every time I move into the wrong position and the broken rib I received in 1995 from Mark (a 4th darn black belt in Tae Kwon Do) during a grading hasn't healed since then... Oh what fun...